As mentioned earlier, I am in my 13th year of being treated for Lymphoma having being diagnosed with non-Hodgkin's "B" cell Lymphoma in 2007. Also mentioned earlier, I have had numerous types of chemo therapies that have kept the cancer from growing but now I am on immunotherapy and take daily pills of IMBRUVICA, 2 capsules of 140mg which seem to be working and which are rather expensive with my out-of-pocket expenses being around $8-10,000 annually; however, I have been able to get a grant from the Leukemia/Lymphoma Society each year to cover all those costs...
Needless to say, I have been lucky there.
IMBRUVICA leaves me with constant fatigue and flu like symptoms and has also been causing me to have repetitive sinus infections about every 6 weeks.
In addition to this drug, I am receiving monthly infusions of OPDIVO for my Melanoma which I discovered I had in 2012 or 8 years ago... on the bottom of my left foot which was surgically removed... NO TREATMENT GIVEN...
In 2017/18, the Melanoma reappeared in my groin with a vengeance and I was started on Yervoy and Opdivo which had little affect other than to keep it from growing which I suppose is GREAT... then, in the summer of 2018, I received 6 radiation treatments while continuing my infusions but just with Opdivo.
The combination of radiation/OPDIVO worked and my Melanoma reduced substantially.
Needless to say, I was again lucky.
Both radiation and OPDIVO have side-effects of extreme fatigue...
So, there you have it.
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