My Cancer Pilgrimage: Still Very Much Concerned

Tuesday, May 12, 2020

Still Very Much Concerned

RISK FACTORS FOR ME:
Age - 72
Heart Disease
Treatment for Non Hodgkin's Lymphoma
Treatment for Metastatic Melanoma
Thyroid & Prostate Issues

When TN relaxed its Stay-at-Home Orders, I still do not leave the house unless it is for a cancer treatment or for an absolutely necessary doctor's appointment.

I still do not feel comfortable going to/on:

Lowe's or Walmart any time soon

a restaurant any time soon

a shopping mall any time soon

a movie theater any time soon

vacation any time soon

AND,

my main concern is what will be the NEW NORM for me and people like me??? If this is going to be a new norm for people like me will all the people who are not like me be tolerant of us???

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For the last 12 years, I have been under the supervision of an Oncologist who is treating me for B cell Lymphoma. I have had over 150 infusions and numerous CT/PET scans as well as MRIs, biopsies (including bone marrow) and well as monthly blood tests to monitor my WBC, RBC, and Platelets.

My treatments have included: Rituxan, Fludara, Cytoxin, Triandra, Opdivo, Yervoy, Imbruvica, Surgery, and Radiation...

Six years into my treatments, I discover Melanoma on my foot that I subsequently discovered could have been encouraged by my Lymphoma treatments of Fludara and Cytoxin. The growth was removed but 4 years later, it metastasized to my groin and a year after that to my neck.

My treatment for melanoma in the groin was Opdivo, Yervoy, and Radiation without surgery because it was too complicated of an area.

My Melanoma metastasized to my neck but when the lymph node was surgically removed, it was dead Melanoma so the treatment worked.

My Lymphoma (CLL) is being treated the same way an Oncologist would treat Leukemia (SLL); in fact, many Oncologists believe that it is the same disease just different stages.

My cancer treatments were further complicated from a serious heart attack 12 years ago. It was a silent attack with minor pain but my LAD was blocked 100%, and two other arteries on the left side were both blocked 90%. The only reason that I did not die in the attack is that my body created its own bypass with dozens of tiny vessels to transport the blood.

My arteries were cleaned out and 5 stints were inserted over a period of 12 months and 3 surgeries.

My Cancer Pilgrimage

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Tuesday, May 12, 2020

Still Very Much Concerned

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