A Good Day

The middle of May 2020 will be looked back upon as a transition point for my change of health conditions which could alter in a heartbeat, but this has definitely been a transition month for the better.

First, my Cardiologist, after wearing a heart monitor for a month, said I no longer had to take Xarelto, the super duper blood thinner.  So now, my arms will no longer show the blue and black tattoo bruises that have been so obvious recently.

Second, my Dermatologist put me on an antibiotic that is dealing rather well with my skin infection that was present on my face, little welts that itched and when scratched bled real bad and turned the area around the welt a dark shade of red, but not really a bruise.  

My Oncologist sent through an order for monthly IVIG infusions, so within a couple of four months with these and my sinus infections should stop and it should also help with my skin infections and perhaps I can stop taking the antibiotic.

My ongoing cancer treatments for Lymphoma and Opdivo seem to continue to be working in that there is no metabolic activity present with either cancer which is a very good sign and it is hoped that this will continue to be the case.

My weight is down 30 pounds largely due to three factors:

1. I am counting and reducing my calorie intake
2. My staph infection and loss of appetite
3. My colon cleanse for my colonoscopy

And...  while I am still about 20 pounds over-weight I still feel a lot better physically not that I have shed 30 pounds.

My constant fatigue has almost disappeared and has become intermittent and my daily nausea has disappeared as there have been no signs of that for weeks.  My appetite has returned but I do not feel constantly hungry.

My diet is totally focused on fish, chicken, beans, and vegetables with heavy doses of onion, bell peppers, mushrooms, and garlic, along with eggs, oatmeal, non-processed cheeses, whole wheat breads.

My sleep habits are uninterrupted and I no longer feel the need to take afternoon naps nor do I wake up still feeling sleepy after sleeping for 8-10 hours.

These are all good signs for a person of 73 years of age.

IVIG Day

Intravenous immunoglobulin (IVIG) is a blood product prepared from the serum of between 1000 and 15 000 donors per batch. It is the treatment of choice for patients with antibody deficiencies. For this indication, IVIG is used at a ‘replacement dose’ of 200–400 mg/kg body weight, given approximately 3-weekly. In contrast, ‘high dose’ IVIG (hdIVIG), given most frequently at 2 g/kg/month, is used as an ‘immunomodulatory’ agent in an increasing number of immune and inflammatory disorders. Initial use of hdIVIG was for immune thrombocytopenic purpura (ITP) in children.

The clinical specialities using the largest amounts of IVIG are neurology, haematology, immunology, nephrology, rheumatology and dermatology. IVIG has had a major impact on the treatment of neurological disorders including dermatomyositis, Guillain–Barre syndrome, chronic inflammatory demyelinating polyneuropathy (CIDP), multifocal motor neuropathy (MMN), myasthenia gravis and stiff person syndrome. 

In haematology it is used to treat immune cytopenias, parvovirus B19 associated red cell aplasia, hypogammaglobulinaemia secondary to myeloma and chronic lymphatic leukaemia and post-bone marrow transplantation. In immunology IVIG is used in the treatment of primary antibody deficiency (PAD), in nephrology, rheumatology and ophthalmology it has been used to treat vasculitis, systemic lupus erythematosis (SLE), mucous membrane pemphigoid and uveitis and in dermatology it is used most commonly to treat Kawasaki syndrome, dermatomyositis, toxic epidermal necrolysis and the blistering diseases.

I started monthly infusions of IVIG about 3-4 years ago because chemo had destroyed my immune system and this would give my body a fighting chance with fighting off diseases.  After about two years, there was a nation wide shortage of IVIG and since my need was not CFRITICAL...  I was prevented from receiving these infusions.  A year or so later and after several months of constant sinus infections, my Oncologist was able to convince the POWERS THAT BE...  that I needed to resume my IVIG infusions.

They agreed, but only allowed me to received these infusions every other month which my Oncologist agreed to and I wonder if every other month is really helping...  but, who I am to fight the system and turn down help...

Today, is one of those days for my infusion.  I have to be at the hospital by 7:00 am and the process takes about 2.5 hours...  some of my pre-meds to keep me from getting sick cause me to sleep for about an hour or so...  therefore, my conscious time does not seem so long...  a silver lining in every cloud can be found...